What I cant un-see.

There is an image of a lady floating around FaceBook at the moment. She is missing after a night out in Melbourne and people are desperately sharing her picture in the hope that it will bring her home.

A few months back a friend wrote this. She spoke about the ways in which the careers we chose shape the way in which we see the world. When I was 19 I worked in a rehabilitation hospital on a social work prac, I did a visit one day to the Department of Forensic Medicine as part of the learning about the ways that social workers can work together. Its the place thats also home to the morgue. As part of our tour we were taken into that space where people are brought when they die suddenly and without reason. The group of students I was with shuffled into a room only to be asked to move to the left as a trolley was wheeled past with a person on it. A deceased person. A person who had been someones parent, or sibling, or lover or friend but a person I had no way of knowing. I saw no part of that person only the outline of their body under a large sheet, it was the body that no longer housed their soul. I caught my breath, I backed back against the wall and I felt a surging heat rise up my chest, along my neck as if someone was tightening their hold on me.

When your old friend anxiety comes to visit for the first time you don’t realise who they are until well after they have left. I remember mumbling something to the lovely social worker that was taking us on this tour – I turned and ran up the long and winding stairs and pushed a door open and ran out into the street. I remember standing for a moment and feeling blinded by a sunshine that I hadn’t noticed before. I smoothed down my hair, took a deep breath and wandered back to my car. I didn’t tell anyone what had happened because I didnt really understand it myself.

Ive been back to that same building umpteen times over the years, for meetings, for court cases, to have coffee with old colleagues who have became friends and despite glancing around corners I never saw that door again. The one that allowed me to escape from what lay below.

I think part of the reason I embrace the world of the space in between, about losses that aren’t quite clear to us, about the world of missing is that it signifies hope  – it might be false hope, it might be positive hope but it still leaves that door open a crack to provide the possibility that we all live happily ever after.

I hope the lady is found, I hope she just took a wrong turn and that someone reveals the door to her.

Does seeing the image of a missing person fill you with hope for a good outcome?

 

 

The C word…

A few days ago I took a little excursion to a suburb Id never been to, to collect a book that I needed. On the way home I was mulling over the conversation Id had with the nice man that I’d collected the book from. In the middle of my brain fog I missed the exit off the freeway and then had to drive on, way past where I lived only to finally turn round, drive back and then miss my exit coming in the other direction. Epic fail.

I’d mentioned to the man what I needed the book for, what I was studying. When I mentioned ‘missing’ he mentioned the C word. Closure. Ive had a few families like this one point out their disdain for the word and I think driving home I was wondering what other words we shouldn’t say. And then I got to thinking about who makes the rules about what we can and cant say.

My girl, in the infinite wisdom of a almost 7 year old, likes to point out words that belong on the can/can’t say list. She has a whole heap of them that she adds and takes away from the list depending on her mood and what might have slipped out of my mouth. Chubby is her forbidden C word, its always been on her list despite her strong desire to watch the Biggest Loser while eating Maltesers. She’s cant spell irony just yet.

I was trying to work out how we all make the list of the right and the wrong words, they seem to attach themselves to people as we grow but more so as we encounter new life experiences. Loss and trauma will do that to you, a conversation can be a virtual minefield of word based bombs. Ive dodged a few in my time….like most people have. Sometimes the need to say the right thing makes you say the complete opposite. Working in the mental health field before moving to missing I noticed how many words litter our vocabulary that paint a pretty crap (apparently that’s a good C word) picture of how we view people that are struggling with poor mental health – crazy, loon, psycho. We throw them around without thinking what power they have. When I started working with families who had lost someone I was cautious about how I discussed things, not to use flippant cliches and not to do dumb stuff like calling a dad by the name of his missing son. More than once.

The thing is no words are ever going to be right, we cant all be conscious of how our words can be misinterpreted when our overall message is one of support or love but we can be open to hearing about what words really rub people up the wrong way. To learn more about how they are heard by others. I was waiting for a friend at the movies last night and lurking on twitter thinking about my shakespearian twist on what comes out my mouth when this quote grabbed me, and then I realised it doesn’t matter how we say things, it matters that we reach out in the first place.

People don’t care how much you know until they know how much you care.

John Maxwell

Do you have words that you cant stand? Do you tell people not to use them?

No other explanations…part two

 

Thanks for popping back this evening to read the second half of this lovely interview. If you didnt read the previous posts click here to have a read.

Like I said in my opening last night one of the main reasons for asking to Emmanuel to chat was for me to learn more about how we, as helpers, look after ourselves. Also a couple of years back I hosted a roundtable for siblings who had someone missing – it was the first time many of them had been given the chance to share their story. Their story away from the glare of their parents, away from other people’s interpretation and without having to worry what their words might mean to others.

These ideas shaped the remainder of my questions.

Here it is….love and light to you all x

 

Working in the trauma field how do you manage looking after you?

To be honest I probably look after myself rather badly. Part of my job is listening to other people’s problems and trying to help them in some way. I always thought if I listened to other people’s problems then I could forget about my own to some extent and not have to worry about what wasn’t working in my own life. The problem with that is that your own problems never really go away and at some point you will need to face your own issues.

Self-care and being kind to yourself is definitely something that you are aware of when you work as a counsellor and it is something that gets discussed in supervision especially. I think it is important to have rostered days off and not to feel guilty about them. When you do it is important to do something nice for yourself and to enjoy it.

The hardest lesson to learn is not to take work home. In the early days of my career I was very bad at that and would think about clients on the bus or at dinner and even before going bed. The more experience you get the easier it becomes to switch off and to detach from work at home.

One important element in all of this is never to talk about work at home or socially. Friends and family have a curious fascination about your job when they know you are a counsellor. Other than the obvious privacy and confidentiality issues, I find it is easier not to talk about work generally when out socially. Having a clear distinction between your life at work and your life outside of work is very important.

Some things I do specifically to take care of myself include going for long walks and learning to meditate. After spending an 8-hour day listening to people talk and then responding in turn, it is very nice to not have to do that when you get home. It is important to me to have that down time when I first get home of not having to engage in any conversation and to spend some time unwinding. I need at least an hour when I get through the front door to unwind and switch off.

The flip side of that is that when you have a particularly bad day or are working on a case that challenges you and pushes your buttons it is important to talk about it in supervision and with your manager so as not to take it home. Having a high level of self-awareness is also very important because you need to know what pushes your buttons and why. If you know the answers to those questions then you usually know what you have to do to address the issue.

Does the wider community understand the losses you have endured – do you feel confident to speak about your experiences?

I often talk about my brother’s death with those closest to me both personally and professionally. When my brother died I got an enormous amount of love and support from work colleagues. All my team came to his funeral and most of them had never met him. The support I got from work colleagues made it easier to talk about.

On the downside I can’t hide from it either. Now that it has been nearly 5 years since he died it isn’t as easy to say to them I am having a bad day because I miss my brother. People look at you funny as if to say, “how much longer is this going to go on,” or “aren’t you over it yet.” I am more selective with what I tell them now. I am open about his birthday and anniversary of his death and Christmas being a hard time, but find that I talk about him less and less at work because I no longer get the support and understanding I did initially.

My brother died on a Thursday and for the longest time Thursday was the worst possible day of the week for me. I could barely function and I could hardly breathe or cope with work but somehow you find a way through it. I would get home as quickly as I could and then I would lock myself in my house and close all the lights and just sit and stare in the darkness and allow myself to feel the grief. I don’t do that anymore but I think for the first 2 years every Thursday was like that. Now I can get through most Thursday’s without feeling this way but if I have a bad Thursday I won’t talk about it because it takes more effort to explain why rather than living through it.

With regards to family and friends it is often hit and miss these days. Many members of my family that were close to him miss him just as much as I do. My brother’s death has had a devastating impact on lots of people. Yet any discussion about him is left to me to generate. They often say to me we don’t want to upset you by mentioning his name and talking about him, but sometimes I wish they would! Not talking about him and my paranoia that they may have forgotten him is infuriating at times and I wish they would communicate more about what they are thinking and feeling.

Most of my friends have been very supportive and have been an excellent outlet for me, but they have also been the ones who have said some of the most hurtful things. I saw a bereavement counsellor for over 2 years after Theo died and I remember talking to a very close friend of mine about the fact that it was coming to an end and how anxious I felt about that. Her response was – “it is about time you stopped seeing the counsellor – now he can finally support someone that needs it!”

What do you think people need to know to understand more about sibling loss?

Bereaved siblings are often called the ‘forgotten mourners.’ All the attention whether rightly or wrongly seems to go to the parents and any other surviving family members that your sibling has (i.e. spouse/ children). As a sibling you are made to feel that your grief is not as important and for some reason you are never able to fully acknowledge the devastation that you feel at your sibling’s death.

Anniversaries and holidays are especially difficult because for some reason most people ask you “how are mum and dad coping?” It amazes me that these people never stop to think that I may not be coping or that I may need someone to talk to at these times. Christmas especially is like that. My brother loved Christmas and would get excited about decorating the house and buying presents for those he loved. We haven’t decorated the house since he died and I find it hard to celebrate at all, but we force ourselves to do so knowing how much he loved it.

Prior to my brother’s death I never would have thought that there was such a thing as competition or a hierarchy of grief, but as a bereaved sibling you are constantly made to feel as if your grief is not as important as what others may be and you are definitely made to feel as if you are at the bottom of the pecking order.

When my brother first died I thought that it would be fairly easy to find some literature and books on sibling grief. Reading has always been an outlet for me and I respond well to structure and guidelines. To my astonishment that was not the case. If I was lucky enough to find a section in a bookshop that had more than one book in that area, inevitably there were no books on sibling grief. There are books on just about every other type of grief but yet again siblings are largely non-existent in the literary world.

Similarly I thought it would be helpful to join a group where I could listen to other bereaved siblings and hear what they had to say and how they deal with their grief. Yet again this proved to be virtually impossible. To the best of my knowledge there is no adult bereaved sibling group in the whole of NSW. Young children who are bereaved siblings get lots of support and interventions and yet are left to fend for themselves when they become adults.

So I took matters into my own hands and created a support group for adult bereaved siblings. I joined The Compassionate Friends NSW which is a worldwide volunteer organisation supporting bereaved family members. Through lots of advocacy and hard work I established its first adult bereaved sibling support group in April 2008. I subsequently also became the siblings representative on their council for a 2 year period.

Society in general just doesn’t recognise adult sibling grief. I think part of the reason is that people are surprised to know that my brother and I were very close and I miss him dreadfully. As adults we sometimes have antagonistic relationships with our siblings and there is this perception that adult siblings aren’t as close as they were when they were younger. This is not always the case. Through my group I have met many adult siblings who had positive and loving relationships with their siblings and who feel the same way I do.

I don’t know why sibling grief is not more widely recognised or considered in any way. Especially as an adult I feel that there are certain expectations that I am able to ‘cope’ better than I have and I feel a lot of judgement when I tell people that I still have bad days and find it hard to get out of bed and do what I have to do. People’s initial response is something like “aren’t you over it yet,” or “it has been nearly 5 years and you really need to move on.”

Of course on a superficial level I have moved on. I continue to work and eat and sleep and go through the motions of living my life. I have travelled and am currently studying and generally do everything I can to keep myself busy. Yet there is a part of me that died the day my brother died and that part of me will never be brought back to life. As much as I want to I cannot pretend that my brother hasn’t died and that his death hasn’t affected me in profound ways. I just do the best I can to get through each day the only way I know how. By the same token I don’t mean to paint a bleak picture and I am not severely depressed or suicidal. I just think it is important to acknowledge the sadness I feel and the reasons why.

The best advice I have received since my brother died is 2 very simple things. A good friend of mine in America wrote to me in the days after my brother’s death and she said to me that all I needed to do was to put one foot in front of the other and to try to keep walking – left foot/ right foot/ left foot/ right foot etc. I didn’t need to do anything more than that in the early days. That took an amazing amount of effort in itself but was something I could relate to.

The other piece of advice I received was to remember to breathe. As simple as it sounds it was something I would often forget to do. When things are so overwhelming and I feel as if I can’t possibly go on and the pain and grief is unbearable all I have to do is simply remember to breathe. Just breathe.

So as simple as it sounds and for whatever it is worth, that has become my mantra now and I remind myself of it on a daily basis – remember to put one foot in front of the other and to breathe whilst I am doing it!

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I dont have any questions to pose at the end of this. I just think that its important to sit with the words. Thanks M x

No other explanations…a TSIB interview

 

I asked a good friend who I met through my own space between, that being my passion about my work and me as a person, if they would be interested in chatting on here. We clicked the first time we met over the phone, he was calm and measured and unflappable. The opposite of me. Part of the reason for asking him to talk was I was to see how he dealt with the intersection of life and loss when you deal with it everyday at work. At some times in my life I haven’t been very good at juggling the two things. I can remember my life falling apart as a single mum and then having to back it up and tell a woman her son had died. Ill always remember another social worky buddy of mine who looked out for me that weekend when I thought the weight of the world would literally crush me.

Ive split this interview over two posts…I wanted people to sit with the honesty thats spoken here. I wanted people to give it the respect and time it needs, to honour someone who has put their heart on the page and shared the darkness and light.

Grab a seat, eat some of that leftover Easter fare and learn something about those people whose job it is to step in at bad times in life. His backstory is amazing…

 

So M…tell me about you?

My name is Emmanuel and I’m in my mid-30’s. I have a degree in social work and I’m currently employed as a counsellor. I am the oldest of 3 boys from an Australian-Greek family. From the age of 14 I knew I wanted to be a counsellor of some sort and am grateful to have found work I am passionate about. My family is typical in many ways and yet sometimes it feel as if there has been a dark cloud hanging over my family for many years.

My father died when I was 3 in quite traumatic circumstances. He was killed in a workplace accident. He was a painter by trade and fell off a ladder from the roof of a 3-storey building. As he fell he landed with the paintbrush handle going through his eye. He was taken to hospital and they operated to remove the paintbrush but he was declared brain dead. He was on life support for 3 days and then died when he stopped breathing of his own accord. He was 27 when he died. To this day I have not heard of anyone else dying in this way and I guess it is one of those things where you all you can say is that it was a freak accident and there really is no other explanation.

My mother remarried when I was 7 and my brother Theo was 5. They subsequently had a child together (my brother Peter). Growing up I felt as if I had to keep my thoughts and feelings about my father a secret, as he was never openly discussed in my home or by my extended family. Even now that I am an adult no one really talks about him and no one mentions his name. I acknowledge his birthday each year alone and the anniversary of his death too. No one rings me or texts me to see if I am okay. Other than my mother I really have no one to share these feelings with. I guess people think that given I have had a substitute dad all these years there is no point talking about or remembering the real one.

My brother Theo had contracted meningitis as a baby and was left hemiplegic (which basically means one side of his body was paralysed). He was subsequently diagnosed with epilepsy when he was 19. The doctors told us there was a direct link to his childhood meningitis and the brain trauma he had suffered. Over the next 8 years we supported him the only way we knew how – by loving him and giving him the space he needed to live his life with this affliction. I’d like to think that I understood as best as I could what it must have been like for him but I suspect I really had no idea. Theo’s seizures were what they call tonic-clonic and he would have an epileptic fit every 6-8 week’s.

Initially it was well controlled with medication, but over time the medication only contained the illness. His doctors had warned us that if he had a seizure that was severe enough it might kill him, but we didn’t really believe it and we never thought that it might happen. Sadly we were wrong. On 28 June 2007 Theo had a seizure and never woke up. The official cause of death was cardiac arrest, which had been induced by hypoxia to the brain following the seizure. Theo was 27 when he died, the same age my father had been and the irony of this is never far from my thoughts.

In thinking about your life what is your space in between?

I guess for me everything boils down to a life before my brother died and my life since he died. My space in between would be the delicate balance I have of continuing my relationship with my brother even though he is no longer with us in the physical sense, and trying not to allow his death to overwhelm and consume me.

I think also my space in between is the space where I can be completely honest with my feelings and emotions surrounding my brother’s death and the fact that I think about him every day and miss him dreadfully, versus the space where I am expected to put one foot in front of the other and get on with my life and continue to try and find joy and happiness when a lot of the time all I feel is sadness and despair.

Grief is such an individual thing and the intensity and rawness of it is something that you can never fully be prepared for. Even though I had lived the majority of my life with my father’s death, I was completely blindsided and torn to pieces when my brother died. The unresolved grief I felt for my father also manifested itself following my brother’s death and this has been difficult to cope with at times.

Space and time are such strange creatures. When Theo first died I remembered time dragging by so slowly. Everything related to time seemed to be out of balance. I wasn’t sleeping properly. I didn’t eat for about 2 week’s. I was living off coffee and cigarettes literally feeling as if I was slowly losing my mind and was convinced that I was going crazy. My senses were affected in the strangest ways. Everything seemed louder and noisier. Things smelt more powerfully and I felt completely disconnected from the world. It was as if time stood still, and yet all around me life continued to go on. I just didn’t feel as if I was part of it.

Now I can hardly believe it has been nearly 5 years since my brother died. That is my current reality and yet how can that possibly be? It honestly feels as if it happened yesterday. When you have moments when you look around you and realise it is 2012 and not 2007 anymore, you start to panic for a minute. You start to wonder about all sorts of things. What have I done with my life since my brother died? How have I managed to get by? More importantly how could I have lived this time without him? Am I honouring his life and memory with the choices I am making today?

The answer is I don’t really know sometimes. All I know is that now my space in between is a constant merry-go-round. It is a rollercoaster ride that never ends and I am on a journey that I will need to navigate as best as I can with the resources that I have at my disposal.

 

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The second half of the interview will be up tomorrow….I think that multiple losses, regardless of how far apart they are, are ones that we dont understand. As a society we are not accustomed to the ambiguity of loss, we don’t necessarily understand the impact of each loss – I think when concurrent losses happen they can be viewed in unison and as direct impacts on each other.

I also wanted to say that Im always so amazed that people are so open and willing to share their piece of the world with me. If any of the content in any of my interviews are confronting please visit the Your Space In Between page for details of support services.

Has anyone dealt with multiple losses…how did you survive. Did time speed up or did it feel like the second hand on the clock was ticking so loudly that it was deafening?

Help Blah

Big personalities are a little hard to contend with. All that jostling for space, talking over each other and not really taking turns to speak and share.

I finished something this week that had been hanging like a metaphorical albatross round my neck since last year. I think at the time when I said yes I thought that the helping would make me feel like I was giving back but it really became the opposite. I noticed that in helping I felt more depleted, I felt bossed around and I felt a little sick at the thought of it all.

I couldn’t sleep last night tossing and turning and having imaginary conversations with myself where I stood up to the big personalities, where I told them really what I thought…they’ll remain imaginary because part of the thing of getting older means you realise that clashing with people in spectacular ways isn’t useful. It just inflames things. Walking away on the other hand, realising that helping doesn’t have to mean giving up a little piece of you is the stuff that life lessons are made of.

I’m helping in my own way from now on, I might not have a purpose or a role but Ill have me and that pays it forward more than any way I know how.

Have you ever found that a nice dose of helping actual became a big dose of blah?